World Brain Day
World Brain Day takes place on July 22nd 2020. Our theme this year is COVID-19: THE Impact. On World Brain Day we aim to raise awareness of the impact of COVID-19 on people with neurological conditions and their families as well as on the neurological charities they rely on for specialist support.
NAI Submission To Oireachtas Committee On COVID-19
On World Brain Day, NAI call on the Government to prioritise Neurological Care Services: a key tool in the fight against COVID-19. The submission can be downloaded HERE
Share Your Experience Of COVID-19 #ONEWORDFORCOVID
We’re asking people to tweet one word that sums up their experience of what it is like to live with a neurological condition during COVID-19 in the lead up to World Brain Day.
We had such a great response from our member groups and would like to thank everyone for sharing and being part of the campaign. Together we can make a difference.
Here are some sample words we received from so many who got involved in the campaign
Unpredictable - Thief - Socialise - Exhausting - Strength - Belief - Uncertainty - Empowered - Sadness - Struggle - Unexpected - Scary - Jail - Earthquake - Fighter - Choice - Calmer - Isolating - Damaged - Neglected - Relentless - Anxious - Stiffness - Loneliness - Frustrating - Fatigue - Tiring - Challenging - Worrying - Unknown
Show Your Support For Neurological Charities #SAVEMYCHARITY
Neurological charities have mobilised a huge response to COVID-19, developing dedicated information hubs, one to one phone support and online services. However at a time when they have never been more needed, many will struggle to keep in operation. This is because COVID-19 has had a devastating impact on the fundraising they depend on to provide their services. In the lead up to World Brain Day we'll be promoting awareness of the work of neurological charities in response to COVID-19 and the impact on their fundraising and sustainability.
Nationwide Survey: The Impact Of COVID-19 On People With Neurological Conditions/Family Carers
We carried out a nationwide survey of over 600 people with neurological conditions and family carers to explore the impact of COVID-19. The survey findings reveal that over a quarter of people are experiencing significant challenges in accessing ongoing care due to the cancellation of appointments and the difficulty of scheduling routine treatments. One third of patients reported a significant impact on family life and relationships and on emotional wellbeing rising to over half of family carers who outlined their struggles to cope on their own without help from family members or respite and other services. The full survey report can be downloaded HERE OR click into the image below.
Living With Lockdown: Survey Infographic
Summary of findings from the latest nationwide research carried out on over 600 patients and their carers. Download the findings HERE OR click the image below.
Experiences Of COVID-19: Video Series
In the lead up to World Brain Day 2020 we spoke to a range of people to get their experiences of COVID-19, including individuals living with neurological conditions, family carers, clinicians and charity leaders.
All World Brain Day materials for social media, web and promotions can be found HERE
World Brain Day Main Flyer
Save My Charity Flyer
One Word For Covid Flyer
Full Survey Report